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The championship will be held at the Polideportivo Municipal Sawmills, from 17.00

The IV Interregional Championship bodybuilding and fitness All Natalia, organized by the Association All Natalia, fighting Niemann Pick Type C (www.todosconnatalia.com) in collaboration with the City of Molina de Segura and Spanish federations and murciana of bodybuilding and fitness, held on Saturday 16 April at 17.00 pm in the Municipal Sports Sawmills (in Street Sawmills, s / n, Molina de Segura).

The event was presented at a press conference Wednesday April 6, by the Mayor of Molina de Segura, Esther Clavero Look, Natalia (girl affected by the disease), the girl's mother and President of the Association All Natalia, Carmen Maria Alarcon Nicholas, President of the Murcia Federation of bodybuilding and fitness, Pedro J. Villa, and the director of the Institute of Neurosciences of Alicante (UMH-CSIC) and head of the research project is carried out within the group Experimental research in embryology at the Neurosciences Institute, Salvador Martinez.

The championship is organized in order to raise funds for research into Niemann Pick type C (with a mortality rate of 100%), suffering little Natalia.

Only about 500 cases have worldwide, and about 20 in Spain.

Natalia case is exceptional because it was the first child under 5 years who was implanted an Ommaya reservoir to supply medication (Hidro-Propyl-Beta-Cyclodextrin, approved by the EMEA as an orphan drug).

For this occasion, the world of bodybuilding and fitness will join the fight against this disease he suffered the least, with an inter-regional championship with the participation of athletes from the regions of Murcia, Valencia and Andalusia.

Proceeds from the event will go towards the research project on advanced therapies (gene and cell), which is carried out within the research group in Experimental Embryology Neuroscience Institute (UMH-CSIC), called Experimental Study of Advanced Therapy in Niemann-Pick disease, captained by Salvador Martinez, director of the Institute, the pointer of Spain and one of the best in Europe in the study of the brain.

Carmen Maria Alarcon said that "from the association, we want to show our deepest gratitude to all entities that work this year: Nutrifitness, Vit O Best, Neron Gym, photographers Frutos, Murcia Decoration, Eva Martinez Beauty Salon, Amer. , Beverly sports nutrition, Api Angel Alarcon, Larrosa furniture, Swedish Supplements, Hotel Eco Cenajo, TCG Real Estate Management, Cafeteria Racso, Orthopedics Farmasana, Revtech Power Nutrition, Confectionery La Cruz, Fitness Chic, Florist Santi, Heirs Montoya, Panificadora Hermanos Espin , Gym Pedro J. Villa, Hurtaplas Advertising, Snoopy Ice Cream, a + Fitness Center, City of Molina de Segura, Murcia Federation of Bodybuilding and Fitness, Spanish Federation of Bodybuilding and Fitness, all media are echoing the importance of our cause, to all the volunteers who selflessly work to take care of every detail and all those who simply will devote part of their time to attend this crucial event in fundraising for research of Niemann Pick type C started a new path, a new hope. "

Source: Ayuntamiento de Molina de Segura