Portal de Molina de Segura
www.portaldemolina.com
Registrations to participate in the II National Congress Fragile X, which will be held on 15 and 16 October in Molina de Segura, running smoothly.
At the moment there are about fifty people registered to attend this forum, I queestá organized by the Association of Rare Diseases D'Genes and the working group Fragile X D'Genes.
It also has the co-organization of the City of Molina de Segura and the Hospital de Molina and collaboration of the Autonomous Community of Murcia and the Spanish Federation for Rare Diseases (FEDER).
In this II Congress together professionals and researchers in the social and health fields and education, aware of this disease, at a conference in which seabordarán the latest research, diagnostic and therapeutic as well as techniques that help improve will be given the quality of life of people afectadaspor this syndrome.
This meeting will be held at the Museum MUDEM Molina de Segura and the registration deadline is the 10th of October.
Registration includes documentation, food in the day Saturday and diploma asistencia.Para 15 children (12 years) and associates D'Genes, registration is free, while professional associations must pay 15 euros, not collegial professionals 25 and the families, students and representatives of associations 10. for more information and registration: http: //portal.molinadesegura.es/index.php option = com_content & view = article & id = 3019 & Itemid = 453rd by calling 968 278 643.
Last year, the first edition of this Congress, held at the Catholic University San Antonio of Murcia (UCAM), brought together more than 180 people.The Fragile X Syndrome is a rare disease most prevalent in the Region Murcia, where more than 240 cases.
Source: D´Genes
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