Portal de Molina de Segura

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February 24: IV Regional Conference on Rare Diseases (19/02/2018)

More than a hundred attendees, including professionals related to rare diseases and patients and family members, will participate on Saturday, February 24 at the IV Regional Conference on Rare Diseases, organized by the Delegation of Murcia of the Spanish Federation of Rare Diseases (FEDER ), the Molina de Segura Town Hall, the Molina Hospital, and with the collaboration of the SMS and the FEM, and which will be held at the MUDEM (Museum Enclave de la Muralla, Molina de Segura).

During his presentation in which the Mayor of Molina de Segura, Esther Clavero Mira, the Councilor for Public Health of the Molinense City Council, Esther Sánchez Rodríguez, the president of FEDER, Juan Carrión Tudela, and the Federation delegate in Murcia were present , David Sánchez González -, the Deputy Director of Molina Hospital, Francisco Menchón Galiana has highlighted "the transcendence of this Conference with which we spread and raise awareness about the problems that those suffering from this type of illness and their families have. it gives light to pathologies that, although they are called rare, affect a part of society, so it is essential to devote advances in health research towards improving the quality of life of patients ".

The conference will be opened by the Regional Minister of Health of the Region of Murcia, Manuel Villegas García, and will include, among others, Vanessa Carrión Téllez, occupational therapist at the Molina Hospital, Casaverde Foundation;

the General Director of Planning, Research, Pharmacy and Citizen Services (CARM), who will explain the Integral Plan for Rare Diseases of the Region;

and Encarna Guillén Navarro, Chief of the Medical Genetics Section and the Pediatric Service of the Virgen de la Arrixaca University Hospital, who will present the "Translational Research on Rare Diseases".

Registration can be done through the website www.molinadesegura.es or the Department of Sports and Health (968388520).

On the occasion of the World Day of Rare Diseases (February 28), next to this regional day, will also be held, on Sunday, February 25, the photographic contest "Footprints of hope", in the Plaza de España de Molina de Segura a 11:00;

and the 7th Solidarity Race for Hope, which will start at 11:30 in the same place.

Source: Hospital de Molina

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